Heres a suggestion for charity---> Basically shes a 5 year old little girl dx with FOP which in other words her body is slowly turning into bone. She lives in bellevue
http://www.thetravelingpraters.com/2012/05/join-ali-in-the-fight-against-fop/
heres another website
http://www.alis-army.org/
1 comment:
I would like to add, this girls mother started the nursing program at Terra. She had to quit due to her daughter in need of constant care. If you read the material, you will see there is no cure. This child needs a special stroller and carseat, and those are just two things I know are needed. I was also informed that due to the fact this condition is so rare, traveling to see specific specialists is another added expense. The family is very proactive and doing numerous things on their own to raise money for the different things needed for this girl, however as we all know medical bills tend to add up. Please consider this family for our charity donation.
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